Become a member, participate, empower your Foundation and the entire Duchenne community. The Duchenne Alliance and the Duchenne Dashboard intend to serve as a conduit and accelerant for the workflow that already exists between Foundations. Please read Marissa Penrod's essay, "Why Work Together?"
Demonstrate your commitment to the principles of the Duchenne Alliance. Although the Alliance is not a legal entity, it is important to unite and declare our purpose. Each Foundation that joins strengthens our effectiveness. This document describes the simple rules of operation and includes the Agreement of Association, Findings and Mission, Objectives, Values, Membership and Withdrawal, and Governance and Management of the Duchenne Alliance.
Please sign this document to become an "Associate Member."
Share resources confidentially while maintaining complete autonomy. One of our most valuable resources is scientific research. As members of the Alliance, we must understand and respect the confidentiality that is required to enable the scientific process - we must honor the trust that is given to us by individual scientists and the scientific enterprise. Additionally, there may be confidential and proprietary information derived from members of the Alliance. This information must also be treated with the highest respect and confidence. In order to operate effectively, we will be sharing this confidential information within the Alliance and therefore require members to sign this agreement for access to these privileges. This document also ensures that your Foundation will maintain complete autonomy without interference from membership in the Alliance.
Please sign the Participation Agreement to become a "Participating Member."
Powerful images, transformative actions. Associate and Participating members are encouraged to submit their logos to the Alliance. While images are powerful, we are mostly interested in your participation. There is no financial obligation to participate, but you might consider providing nominal funding to the DuchenneDashboard. Details